Links to Other Sites
Most of these links have additional links worth exploring. Happy surfing! :^) To
suggest changes, contact mflemi@aol.com.
DisabilityEducationalInternationalJournalsMedicalMitochondrial
On-Line SupportSearchSpecial EducationSupport
Click here to view the following links
outside the UMDF frame.
Support for Patients, Families, and Friends:
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On-Line Support- Email Discussion Groups, Newsgroups,
Listservs, Chat rooms, etc.:
- C-NET_SWALLOWING_DISORDERS@LISTSERV.ARIZONA.EDU is one of the Center-Net mailing lists,
dedicated to the discussion of dysphagia. To subscribe, e-mail the following message to listserv@listserv.arizona.edu
"subscribe c-net_swallowing_disorders" The list moderator is Barbara Sonies.
- Center for Effective Collaboration and Practice forum on Strength-Based Assessment practices
- Communication
Disorders List Server
- Look for newsgroup postings with Deja News - The
Usenet Archive. In the Quick Search box enter: "mitochondria* & disease"
(without the quotes.). I found some postings by parents whose children have mitochondrial
disease.
- DYSPHAGIA@CYBERPORT.COM is a discussion forum dedicated to discussion of dysphagia. To
subscribe, send the following message to majordomo@cyberport.com
"subscribe dysphagia@cyberport.com" The listowner is Phyllis Palmer
(ppalmer@blue.weeg.uiowa.edu)
- GTUBE is a list for list for users of, and caregivers to those who use, feeding
gastrostomies. List topics include nutrition, tube attachments, feeding regimes, stoma
care, leak management, transition back to oral feeding. To subscribe, send email with the
subject "SUBSCRIBE" to gtube-request@gospel.iinet.net.au.
The list owner is Ward Scarff (scarffam@iinet.net.au)
- Description - Listservs
- Harvard Neurology WebForums
- MELAS Online Network - Listservs
- MigDB - The Mitochondria
Interest Group
- Mito List - Listserv
- Mitochondria Interest Group
- Listserv
- Mitochondrial List -
Listserv
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Medical Related (General):
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Mitochondrial Related Organizations and Diseases:
- General Mitochondrial Disease Links, including many with multiple diseases:
- Specific Mitochondrial Disease Links (see Disease Descriptions for more
specific disease info):
- Aging:
- Alpers:
- Alzheimer's:
- Cardiomyopathy:
- Carnitine Deficiency:
- Complex I:
- Complex II:
- Complex III:
- Complex IV / COX:
- Complex V:
- CPEO:
- CPT II:
- Diabetes-Deafness Syndrome, Maternally inherited:
- Diabetes Mellitus, Juvenile-onset insulin-dependent:
- Fatty Acid Oxidation Disorders
(Beta-Oxidation,LCAD,LCHAD,MAD/GA-II,MCAD,SCAD):
- Glutaric Aciduria II:
- Huntington:
- KSS:
- Lactic Acidosis:
- LCAD
- Lebers:
- Leigh's:
- Lethal Infantile Mitochondrial Myopathy (LIMM)
- Liver Disease:
- MCAD:
- MELAS:
- MERRF:
- Mitochondrial DNA Depletion:
- Mitochondrial Myopathies:
- MNGIE:
- NARP:
- Parkinson's:
- Pearson:
- Pyruvate Carboxylase Deficiency:
- Pyruvate Dehydrogenase Deficiency
- Respiratory Chain:
- SCAD:
- SCHAD:
- VLCAD
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Special Education:
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Disability:
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Online Medical Journals (some of these require a fee):
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Biology & Medicine Educational Links (Cell & Mitochondrial Function):
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International:
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Search the Web:
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Home | Site
Directory | Information | Research
| Support | News | Links | About the UMDF
The United Mitochondrial Disease Foundation, P.O. Box 1151, Monroeville,
PA 15146-1151, Phone: (412) 793-8077, FAX: (412) 793-6477
Last Update: 21-Mar-99
mflemi@aol.com
